The HUS has been dictated and it is the same. No changes. The IVH is still there.... But... She is doing well. She hasnt been able to nipple in a while because the breathing is still too fast. She has been having more desats and bradies. Her oxygen has been bumped up some and her flow is still up. She now weighs 2091 which is up from 2051.
Pictures later... I lost my card reader so Im having to use my desktop and its a lot of trouble.
Friday, May 30, 2008
Wednesday, May 28, 2008
HUS Results Minus dictation...
Grade 1 Right side... Its still there :/ They should have it dictated tomorrow and Ill know more then...
5.28.08
Where to start...
Nothing really new. They have tried a lot of "new" things but they all failed.
They have been trying to nipple her but she just isnt doing too well. Her breathing has been too laboured for her to nipple.
She has been gaining weight. She is now 2018!! Shes a big girl now! The way she was going in the beginning she was supposed to have been coming home around this time :/ Instead she is still in there still waiting on some of the basic things.
They tried her cannula off of her but almost immediately she started desatting and hanging around the 60s so she is back on it.. It didnt even last half a day.. Today she was having more desats so they increased the flow.
Here is a video of Kaia holding her and brushing her hair... Notice how he is just rocking and rocking.
And some pictures
And this is how they fell asleep last night.. Alo crawled over to Kaia and snuggled up with him.
Nothing really new. They have tried a lot of "new" things but they all failed.
They have been trying to nipple her but she just isnt doing too well. Her breathing has been too laboured for her to nipple.
She has been gaining weight. She is now 2018!! Shes a big girl now! The way she was going in the beginning she was supposed to have been coming home around this time :/ Instead she is still in there still waiting on some of the basic things.
They tried her cannula off of her but almost immediately she started desatting and hanging around the 60s so she is back on it.. It didnt even last half a day.. Today she was having more desats so they increased the flow.
Here is a video of Kaia holding her and brushing her hair... Notice how he is just rocking and rocking.
And some pictures
And this is how they fell asleep last night.. Alo crawled over to Kaia and snuggled up with him.
Sunday, May 25, 2008
5.25.08
On the 23rd I got to nipple feed her for the first time! She only took 8ml but it was a start! Yesterday and today she has been nippling.. They are going 1-2 per shift and she took half of her feed for one of them! Her feeds are up to 40ml now so that was pretty good.. It is still neocate.. and let me tell you, that stuff is HORRIBLE! I wouldn't drink that stuff for anything. Kaia doesnt even like it and Kaia will drink anything :) Its definitely not meant to be a PO drink.. GT maybe, but NOT PO.. (There is a reason why they make flavour packets for it)..
Then on the 24th Kaia got to do this:
Could he be any more proud?
And today Kaia got to do this:
Alo-shua just looked on.. He tried to poke her in the head a few times
Today Little Miss moved into this:
Then on the 24th Kaia got to do this:
Could he be any more proud?
And today Kaia got to do this:
Alo-shua just looked on.. He tried to poke her in the head a few times
Today Little Miss moved into this:
Friday, May 23, 2008
Babywearing!
First.. the update so I dont have to write another one.. She hit 4# last night!!! 1832... Today they are trying to feed her via OG..So far so good.. She did have some residuals but they say it is "Ok"... Though 2 weeks ago the same amount of residual caused her to have to go back to TPT... So we will see.. Hopefully she will do good with eat, and get to start nippling!! Or at least trying to NNN (non-nutritive nursing)
And finally... Ive been looking forward to this day since I was still pregnant...
I had to stop BWing pretty early on with the pregnancy.. But we are back!!
Alo yesterday:
AND!!!!!!! AYBRA!!!!!!
So.. She wasnt too happy to be held at all (sling or no sling) but I did get some pics in the sling. She is my smallest BWer yet. I didnt start with Kaia until he was 6#..
And these are the ones from the other day that I was meaning to share..
Video of Alo and Aybra ... She was getting a bath
Alo sitting pretty in the chair watching his baby sissy
Aybra in the bath
And finally... Ive been looking forward to this day since I was still pregnant...
I had to stop BWing pretty early on with the pregnancy.. But we are back!!
Alo yesterday:
AND!!!!!!! AYBRA!!!!!!
So.. She wasnt too happy to be held at all (sling or no sling) but I did get some pics in the sling. She is my smallest BWer yet. I didnt start with Kaia until he was 6#..
And these are the ones from the other day that I was meaning to share..
Video of Alo and Aybra ... She was getting a bath
Alo sitting pretty in the chair watching his baby sissy
Aybra in the bath
Wednesday, May 21, 2008
5.21.08-2
Awww Alo-shua is watching John and Kate with me and they were all clapping and saying "Yay" so Alo-shua says "yeah... yeah"
He went with me to the hospital tonight and he had a blast. He played with the curtain into Aybras room and he told this one nurse (only this one) "Hi" everytime she walked past. She thought he was cute.
Alo-shua got to watch the nurse give Aybra a bath.. He just sat in the chair and looked and looked. I kept trying to get him to touch her but he wouldn't. He doesnt really touch her much at all.. I have to literally force his hand to touch her.. So he just sits back and watches.. and plays with her bed (opens and closes the isolette door) Thats about as close as he gets to touching her.. I imagine its going to be LOADS of fun when she gets to come home
He lasted for a while but then started to get really loud and hyper.. banging on the window and yelling so I had to bring hiim home.
Aybra was good today and tonight. After her bath she was weighed and she had gained even more weight. She was 1798.. re-weighed and 1792. I think they took the latter.
Ill edit this later with pictures and video from tonight (have to upload it)
He went with me to the hospital tonight and he had a blast. He played with the curtain into Aybras room and he told this one nurse (only this one) "Hi" everytime she walked past. She thought he was cute.
Alo-shua got to watch the nurse give Aybra a bath.. He just sat in the chair and looked and looked. I kept trying to get him to touch her but he wouldn't. He doesnt really touch her much at all.. I have to literally force his hand to touch her.. So he just sits back and watches.. and plays with her bed (opens and closes the isolette door) Thats about as close as he gets to touching her.. I imagine its going to be LOADS of fun when she gets to come home
He lasted for a while but then started to get really loud and hyper.. banging on the window and yelling so I had to bring hiim home.
Aybra was good today and tonight. After her bath she was weighed and she had gained even more weight. She was 1798.. re-weighed and 1792. I think they took the latter.
Ill edit this later with pictures and video from tonight (have to upload it)
5.21.08
The doctor called this morning to inform me of her HUS results.. He said that he thinks they just mis-read this last one and that there is no IVH. Both he and I agree that a bleed to show up this late is quite uncommon. He said he would literally fall off of his chair if it really was a bleed.. So I have hopes that the next scan (on the 28th) will show nothing. The waiting is going to be hard.
The NICU ran out of room to store my breastmilk so they sent home one bag last night.. While I was putting it up I snapped a picture. I dont have the room to store it so its all being donated.. But here is what they sent home (the bottles).. Its over 100 ounces. There is around 150 ounces in the bags that I have pumped and frozen at home. The hospital still has 6 bins of milk that they want me to take home :/ I have to get this stuff shipped off before I can bring anything else home otherwise I will have to dump it out. Alo has a freezer in his room and it is full too. It has about 300 ounces in it.
This is my stash for personal use if I need it. It is about 150 ounces.. Takes up a lot less space than the bottles
Aybra looking around and sucking on the evil binky while being held
And cute little baby feet
This was from last night (BTW She weighed 1760)
And this is from a few days ago
And my boys and their papa... Yep I like to dress them alike
The NICU ran out of room to store my breastmilk so they sent home one bag last night.. While I was putting it up I snapped a picture. I dont have the room to store it so its all being donated.. But here is what they sent home (the bottles).. Its over 100 ounces. There is around 150 ounces in the bags that I have pumped and frozen at home. The hospital still has 6 bins of milk that they want me to take home :/ I have to get this stuff shipped off before I can bring anything else home otherwise I will have to dump it out. Alo has a freezer in his room and it is full too. It has about 300 ounces in it.
This is my stash for personal use if I need it. It is about 150 ounces.. Takes up a lot less space than the bottles
Aybra looking around and sucking on the evil binky while being held
And cute little baby feet
This was from last night (BTW She weighed 1760)
And this is from a few days ago
And my boys and their papa... Yep I like to dress them alike
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